Do I Need to be Seen? Check our symptoms list to find out.

Our Center

ATTENTION: CHANGES TO YOUR MEDICATION ORDERS

Due to process changes within St. Lukes it will now take longer to place orders and refill medications. If a prior authorization is needed, please allow up to 10 working days. If you have questions please contact the CF center @ 208-381-7092.


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SAVE THE DATE

Cystic Fibrosis Center Of Idaho Parent And Caregiver Night Out
Dinner And Presentation

This evening will be sponsored by Allergan. It is intended for parents/caregivers of individuals living with CF. Please refer to the infection control guidelines at cff.org. If you are an adult living with CF and would like to attend, please contact the CF Center of Idaho.

Learn More

MBSR June 2017 copyOnline Mindfulness Based Stress Reduction Class Free for Those with CF

Free for Those with CF
$50 for CF Parents/Spouses/Caregivers

Led by Julie Desch, MD
Online MBSR Open to Participants Nationwide!

Read More

A reminder to submit your question by January 31:  http://www.cff.org/InsightCF

CF Community Members,

Where do you wish CF research would go next?  What information from the CF Foundation Patient Registry do you wish you knew?  What CF trends are you, your colleagues and your patients and families wanting to know more about?

All CF community members are invited to participate in the new CF Foundation initiative, “Insight CF.”  CF clinicians, researchers, patients, and families are encouraged to submit questions to help drive a research agenda.  Questions will be collected and then voted on by the CF community.  The CF Foundation will then assemble a multidisciplinary research team to develop a study design and analysis plan to address the top questions.  Although the project prefers questions that can be answered using data from the CF Foundation Patient Registry, all questions are welcome!

Submit your question here: http://www.cff.org/InsightCF

Please consider forwarding this message to your colleagues, patients, and families.  Help us collect research questions from everyone in our community!

Thank you in advance for your time to reply to our request.

Sincerely,
Breck Gamel
Chair of the Patient and Family Research Advisory Committee

My 7 year old son suffers from the life-shortening genetic disease, cystic fibrosis. Here is his story: https://youtu.be/qgMyxFtvw84 And here’s how you can help: http://initforbennett.com


The St. Luke’s Cystic Fibrosis (CF) Center of Idaho has been serving patients and families in Idaho and surrounding states for over 14 years. The St. Luke’s Cystic Fibrosis Center of Idaho is fully accredited by the Cystic Fibrosis Foundation to care for pediatric and adult patients.

The St. Luke’s CF Center of Idaho is an outpatient clinic of St. Luke’s Health Systems, and is located in the Children’s Specialty Center on St. Luke’s Boise campus.

We place a very strong emphasis on infection control at the St. Luke’s CF Center of Idaho, and follow the recommendations of the Cystic Fibrosis Foundation. All of our team members wash their hands before you are called back for your clinic visit. The team will put a cover gown and mask on before entering your examination room. Gloves will be worn with patient contact.

Upon leaving the room the team member will remove their gown and gloves and either wash their hands with soap and water or use alcohol based hand sanitizers. Staff use antimicrobial wipes to clean rooms between each patient.

To further control infection, you will need to wear a mask while in the waiting room. You will need to be 6 feet between patients. There are infection control supply towers throughout the building and at registration. You need to have masks when you go to the hospital to have labs, medical imaging or any procedure done.

The infection control guidelines we follow are available on this website.

Did you know?

The FDA has announced a voluntary recall by PharmaTech. The company is recalling their liquid drug and dietary supplement products due to the potential risk of contamination with Burkholderia cepacia. For a list of the affected products, read the FDA MedWatch Safety Alert.

Did you know?

About 30,000 people are living with Cystic Fibrosis (70,000 worldwide).

Did you know?

Approximately 1,000 new cases of CF are diagnosed each year.

Did you know?

More than 75 percent of people with CF are diagnosed by age 2.

Testing for CF

Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test and a clinical evaluation at a CF Foundation – accredited care center.

Did you know?

Many Cystic Fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass, a service formerly known as PARC, makes sure no one has to do it alone.

Did you know?

For the first time, adults outnumber children in the CF Registry.  50.7% of people in the registry are over the age of 18.

What to expect

Each person with CF is seen by physicians and staff trained in CF care at every visit. Visits are scheduled for every two to three months for each person with CF and more often if needed.

Things to expect at each visit are:

  • Pulmonary function testing (for children 5 and over) and review of airway clearance, nebulized medications, and equipment with a respiratory therapist
  • Review of medications and education sessions with nurses who specialize in CF
  • Nutritional evaluation and assessments by the dietitian
  • Access to a social worker who specializes in care of the family with CF
  • Access to a certified teacher who specializes in advocating for patients with CF in the educational system
  • Access to a research coordinator who will review your or your child’s qualifications for ongoing studies and research news

Once a year we will perform a comprehensive health evaluation which will include additional testing to monitor vitamin levels, liver function testing, and overall health.

After each visit, you will be given an after visit summary that includes our findings and recommendations from the visit.

We follow the CF Foundation’s guidelines for care, which are evidence based.  These guidelines are available online at: http://www.cff.org/treatments/CFCareGuidelines/AgeSpecificCare/

What to bring

Please bring your insurance information and some form of ID (for example, driver’s license) to every appointment.

We would like all of your visits to our clinic to be efficient and rewarding, and would recommend you bring a few activities for yourself or your child such as magazines, books, or a small toy. We do not have shared books or toys in or clinic area due to infection control concerns.

Events

BreatheCon 2017

SAVE THE DATE: BreatheCon 2017 will take place Sept. 8 and 9. Check back soon for more details or email breathecon@cff.org with questions. Building off the success of BreatheCon, this year we are also introducing two one-day, topic-specific CF MiniCons. CF MiniCon: Transplant will be held on Sunday, May 21 and CF MiniCon: Young Adult […]

Cystic Fibrosis Center Of Idaho Parent And Caregiver Night Out

This evening will be sponsored by Allergan. It is intended for parents/caregivers of individuals living with CF. Please refer to the infection control guidelines at cff.org. If you are an adult living with CF and would like to attend, please contact the CF Center of Idaho.