What is research?
Research is a process of investigation, a search for knowledge. Clinical research in medicine determines the safety and effectiveness of medications, devices, and treatment procedures used in human beings. These may be used for prevention, treatment, diagnosis or for relief of symptoms in a disease such as cystic fibrosis.
Clinical research is essential to get new drugs through the development and approval process. Carefully conducted clinical trials are the safest and fastest means to find treatments that work and improve the health of those with cystic fibrosis.
Interventional trials done under controlled conditions determine whether experimental treatments or new ways of using known therapies are safe and effective. Observational studies address health issues in large groups of people or populations in natural settings. Individuals with cystic fibrosis are needed to both types of clinical trials in order for research efforts to move forward.
Information about clinical trials are being held can be found at https://www.cff.org/Trials/finder.
Any patient with cystic fibrosis is welcome to participate in research studies being conducted through our center if they meet the study criteria, and their primary CF care provider approves. If you are interested in a study that is not being conducted at our center, our research coordinators will work with you to refer you to a participating center.
Participation in any study is completely voluntary.