CF Peer Connect

Sometimes the best support is talking to someone who knows what it’s like to live with cystic fibrosis.

Description:
The program gives people with CF the chance to talk with and learn from someone who is also living with CF and has gone through a similar life transition or milestone. Mentoring topics include going to college, dating and relationships, work/career decisions, going on disability, adjusting to a later CF diagnosis, starting a family, infertility, parenting, CF-related diabetes, LGBTQ topics, considering lung transplant, and post-transport issues. https://www.cff.org/Get-Involved/Community/CF-Peer-Connect/

CF Peer Connect is not for mental health counseling or medical advice – If you are seeking this please contact Mark Vaught at 208-381-7092.

Connect with someone living with CF.

Although no two people with CF are the same, they do face similar challenges. Talk via phone or video conference to someone who understands firsthand what its like to live with CF and is willing to share his or her experiences on topics such as: transitioning to college, dating and relationships, starting or stopping work, getting a G-tube, considering a lung transplant and more.

Connect with a peer mentor.

Get started in 4 simple steps

  1. Visit www.cff.org/peer to register. You can also call us at 240-482-2870.
  2. Expect a call within one week. We will call to discuss your experience and consider you rneeds. Once we make a match, we will connect you to your peer mentor.
  3. Make the connection – and stay connected. Ask questions, share your story and get support from someone who knows what it’s like to live with CF.
  4. Follow-up. We’ll follow up to make sure you are receiving the support you need.

Visit www.cff.org/peer today.

Be a mentor. Make a difference.

As someone living with CF, your story is unique. Become a peer mentor and share your expereinces to help others with CF feel more confident in navigating their journey. If you want to volunteer as a peer mentor, visit www.cff.org/mentor or call 240-482-2870.

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Did you know?

The clinic is moving locations this summer. Stay tuned for more information!

Did you know?

We hold monthly meetings during the school year with our Patient and Family Advisory Board (PFAB). We work on issues and ways to improve CF patient care in the clinic and in the hospital

Testing for CF

Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test and a clinical evaluation at a CF Foundation – accredited care center.

Did you know?

Our center puts on free education days every other year to help educate hospital staff and anyone in the community about CF

Did you know?

Our center is moving locations in the spring of 2018! Stay tuned…

Did you know?

Many Cystic Fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass, a service formerly known as PARC, makes sure no one has to do it alone.

Did you know?

For the first time, adults outnumber children in the CF Registry.  50.7% of people in the registry are over the age of 18.

Did you know?

We have a Facebook page, too! https://www.facebook.com/cysticfibrosisidaho/

Did you know?

Idaho is now screening for a handful of CF mutations on the newborn screening.

Did you know?

You can have your picture scrolling at the top! Just e-mail one you would like us to add and sign a photo release form

Did you know?

Patient education nutrition recipes: add: For more recipes, check out our Facebook page https://www.facebook.com/cysticfibrosisidaho/