What do I need to know about research?

People participate in research for a number of reasons, including:

  • Getting access to new drugs before they are available to the public
  • Having a chance to help others with CF
  • Helping to find a cure for CF
  • Finding new therapies and drugs to improve their quality of life

There are many things to keep in mind when considering a clinical trial:

  • How much time commitment is there?
  • Will this interfere with my normal schedule and treatments?
  • Will the study help me stay healthy?
  • Do I see this fitting into my life?

Other questions may be found at https://www.cff.org/Research/Developing-NewTreatments/Clinical-Trials/What-to-Consider-When-Joining-a-Clinical-Trial/Questions-to-Ask-When-Considering-a-Specific-Trial/

Please note which ones you feel are important, and please do feel free to bring your questions to any appointment where the clinical trial is discussed.

Patient safety is of the utmost importance. There are many layers of protection for human subjects. Here is more information: https://www.cff.org/Research/Developing-New-Treatments/Clinical-Trials/Clinical-Trials-101/Patient-Safety-Is-a-Priority/

Research is always voluntary. You may choose not to do a study, or to leave at any point in the study without penalty.

You are the key to CF research, and we thank you for your time and effort in learning about CF clinical trials.