Look up our stats

Did you know that you can see statistics for any CF clinic in the country? Here are our stats.  The latest update is from 2015:

https://www.cff.org/Research/Researcher-Resources/Patient-Registry/Care-Center-Data/

You do need to register for the website to access this information.

Total number of patients in the registry at this center: 135.
Measures Level at this CF Center National Average National Goal
Lung Function in Children *:
Mean FEV1 percent of predicted in children 6 to 17 years of age.
92.2 93.6 100.0
Lung Function in Adults *:
Mean FEV1 percent of predicted in adults 18 years of age and older.
65.7 66.3 75.0
Nutritional Status in Children *:
Mean BMI percentile in children 2 to 19 years of age.
44.8 53.8 50.0
Nutritional Status in Adults *:
Mean BMI in adults 20 years of age and older.
22.4 23.0 22.5
Screening for CF-related Diabetes:
Percent of non-diabetic patients 10 years of age and older screened for CF-related Diabetes (CFRD).
100.0 86.4 95.0
Guidelines for Care in Children:
Percent of children less than 18 years of age who had at least four clinic visits, two lung function tests and a sputum or throat culture.
69.7 71.7 90.0
Guidelines for Care in Adults:
Percent of adults 18 years of age and older who had at least four clinic visits, two lung function tests and a sputum or throat culture.
57.5 53.8 90.0
* Adjusted for attained age of patients, gender, pancreatic sufficiency, race/ethnicity, socioeconomic status, and age of diagnosis
An ‘N/A’ means the health measure does not apply to this care center’s patient population.
An ‘NR’ means the center had fewer than 10 patients meeting the identified health measure.